Dedicated to our galactosemic children

FOOD INGREDIENTS WHICH ARE UNACCEPTABLE IN THE DIET FOR GALACTOSEMIA:

  • Butter
  • Nonfat Milk
  • Milk
  • Nonfat Dry Milk
  • Buttermilk
  • Cream
  • Milk Chocolate
  • Cheese
  • Buttermilk Solids
  • Nonfat Dry Milk Solids
  • Milk Derivatives
  • Dried Cheese
  • Milk Solids
  • Lactose
  • Casein
  • Sour Cream
  • Dry Milk
  • Whey and Whey Solids
  • Dry Milk Protein
  • Yogurt
  • Organ Meats (liver, heart, kidney brains,
    sweetbreads, pancreas)
  • Sodium Caseinate
  • Calcium Caseinate
  • Tragacanth Gum
  • Lactostearin
  • Lactalbumin
  • Dough Conditioners*
  • Hydrolyzed Protein**
  • Margarine***
  • MSG (Monosodium Glutamate)****
  • Soy Sauce*****

NOTE: Lactate, Lactic acid and Lactylate do not contain lactose and are acceptable ingredients.

* Dough Conditioners may include caseinates which are UNACCEPTABLE. Most labels specify the name of the conditioner which is added to the product. If not, contact the company to make sure that all are acceptable.

** Hydrolyzed protein is UNACCEPTABLE and is commonly found in canned meats, like tuna. Hydrolyzed vegetable protein, however, is acceptable.

*** A few diet margarine's do not contain milk. Check labels before using any brand. If "margarine" is listed as an ingredient in any processed food, consider the product UNACCEPTABLE.

**** MSG or Monosodium Glutamate itself is acceptable; however, some MSG's contain lactose extenders. It is best to avoid MSG whenever possible.

***** Soy sauce is UNACCEPTABLE if it is fermented. Brands must be checked before including this in the galactosemic diet.

(PGC Website, 2010)

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Sources of Galactosemia Diet Guidelines

Unfortunately, the classic galactosemic diet is a controversial one. Different clinics, doctors, and parents follow different rules. Below is a list of diet guides that some parents follow. You can get these guides from your doctor/clinic/nutritionist. Please check with your own clinic for diet advice. It is important to follow your own doctor's advice, because what one clinic recommends for diet may not be what another recommends. We understand the frustration this brings and this is why we encourage all parents to gather as much information as they can, work with their clinic, so that they can make the best possible decision they can for their own child.

1) Understanding Galactosemia A Diet Guide
Lori Hartz, M.S. R.D.
Kimberly Pettis, R. D.
Sandy van Calcar, M.S. R.D.
Biochemical Genetics Program
University of Wisconsin-Madisom
Waisman Center, 1500 Highland Ave., Madison, WI

2) A Guide for the Family of the Child With Galactosemia
The Ross Metabolic Formula System, Ross Laboratories
Medical Editor: Phyllis B. Acosta, Dr. PH, RD

Levels of Galactose

The PGC website list printabe pdf files that contain the contents of galactose in the following:

baby food, beverages, meats, prepared dishes, legumes, vegetables, fruit, nuts, and non-dairy foods. Please visit http://www.galactosemia.org/galactose.asp for a complete listing of galactose in each.